Having a Great Summer

In the last entry, I mentioned there's a supplemental insurance available through the state for kids with medical diagnoses. I applied for it, and we got accepted! We pay monthly based on our income (I live in Michigan, so we live modestly:) My mastokid started on Gastrocrom at the end of June. Five weeks later he's doing great! He has not had a major masto-meltdown in a long time. He still gets "fussy" but he's usually tired or due for one of his other meds. I am also switching him onto Xyzal from Zyrtec. I am hoping the nighttime dosing will last the whole next day. I have been trying to look online to see if it makes a huge difference to give it in the morning. He didn't seem too tired last night after he took it and I think that is why they suggest giving it at night. We'll see how this day goes.

I also got a 504 in place for him for September. The school is switching to all plant based cleaners!! They will triple rinse the carpets after cleaning them and make sure to do it over the weekend so they have time to air out. No one will be able to wear perfumes or fragrances, no air fresheners, he will use his own soap for handwashing. He will only eat food from home!! He will carry his own water bottle for cooling off. They are setting the room temperatures lower for him (we'll have to see about this--my older two went through this same school and it was always burnin hot in their rooms. This may end up being a fight.) He's also carrying a pack with meds--Hydroxyzine, Epi-pens, masto lotion. I am so relieved that it's all in place. There was no fight whatsoever, they were unbelievably accomodating.

Other than all that being in place, the kids are having a great summer. We went to Cedar Point--super fun that day! They are doing a lot of swimming. We do a lot of staying in during the day and we play in the evening when it's cooling off. I'm trying to enjoy each day as it comes.

I hope everyone is having a great summer!!

Kristy